MS Society: Greater Delaware Valley

The lastest news about multiple sclerosis research and services in the Greater Delaware Valley area

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2013 Newly Diagnosed Teleconference Series - Treatment Options

Posted by pae on September 16th, 2013

The second teleconference in the series took place on September 10. Although there is no cure for MS, effective strategies are available to modify the disease course, treat flare-ups, manage symptoms, improve function and safety, and provide emotional support. In combination, these treatments enhance the quality of life for people living with MS. This call provided an overview of the types of medications used to treat MS, including the ways the medications are administered, how often, and side effects.


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2013 Newly Diagnosed Teleconference Series - MS 101: Understanding MS

Posted by pae on September 9th, 2013

The first teleconference in the series took place on September 3. Whether you have or may have MS, or care about someone who does, finding the right information is an important step. Learning more about the disease can help ease the anxiety and confusion that sometimes comes. This call covered the basics of multiple sclerosis, including how to access information about MS and ask questions.

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Care for the Carepartner Teleconference Series: Home modifications and assistive technology

Posted by pae on August 22nd, 2013

The final teleconference in the series took place on August 20. Just as there are a wide range of abilities and disabilities among people with MS, there are a wide range of caregiving activities. This call discussed the array of mobility aids, tools, technology, adaptive strategies, and environmental modifications available to help carepartners conserve energy, simplify work, and ensure safety for everyone. Click here to download the handout (pdf).

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Care for the Carepartner Teleconference Series: Caring for the Caregiver

Posted by pae on August 22nd, 2013

The second teleconference in the series took place on August 13. Providing emotional support and physical care to someone with MS is often deeply satisfying, but it is sometimes distressing, and now and then simply overwhelming. The strain of balancing employment, child-rearing, increased responsibilities in the home and the on-going care of a loved one can lead to feelings of martyrdom, anger, and guilt. This teleconference focused on what it means to be a caregiver; emotional, physical, mental and spiritual needs; and overall how to take care of oneself while providing care to someone else.

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2013 Care for the Carepartner Teleconference Series: The Hidden Effects of MS - Relationship Survivability

Posted by pae on August 22nd, 2013

The first teleconference in the series took place on August 6. MS can test even the best of partnerships. Husband, wife, parent, child, caregiver, support partner, whatever you’re called, it’s inevitable that your relationship with your loved one will be affected by MS. This call focused on what you and your carepartner can do to help improve communication, rebuild trust, strengthen your partnership and ultimately cope with the challenges of MS together. Click here to download the handout.

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The Spectrum of MS: Improving Independence in Progressive MS

Posted by pae on July 2nd, 2013

MS symptoms can sometimes progress to the point that they significantly interfere with daily activities. Maintaining control and independence in daily living does not always mean doing things the same way you did them before. This call discussed how to navigate the world of assistive technology and suggested ways to modify your environment, at home and at work, to optimize independence. The speaker for this call was June Halper, MSN, ANP, FAAN.

This teleconference took place on June 12, 2013. Click here to view the PowerPoint presentation for this program.

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Clinical Trials and Progress in MS Research

Posted by pae on June 6th, 2013

The ninth presentation in the 2013 LINKS Teleconference Series took place on May 28. Clinical trials help to determine if a drug is safe and effective. Those with MS who are willing to volunteer in these studies make it possible for all of us to look forward to new and better therapies. However, there are essential questions you should ask yourself before participating. Learn the basics of clinical trials and find out about current MS research.

Click here to view the PowerPoint presentation for this program (pdf).

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Minimizing Your Risk of Falls

Posted by pae on May 24th, 2013

The seventh presentation in the 2013 LINKS Teleconference Series took place on May 14. A common effect of MS is impaired mobility, including difficulty walking. Because of mobility problems and other symptoms, those with MS are at significant risk for falls and the resulting, potentially life-changing consequences of fall-related injuries. This teleconference was designed for people living with MS who are ambulatory but who may be at risk for falling. Learn about fall risks, tips and strategies to reduce the risk for falling, and exercises directed at improving postural alignment, balance, endurance.

Click here to view the PowerPoint presentation for this program (pdf).

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Healthy Living with MS: Diet & Nutrition

Posted by pae on May 24th, 2013

The eighth presentation in the 2013 LINKS Teleconference Series took place on May 21. Maintenance of general good health is very important for those with MS or any chronic disorder. A well-balanced and carefully planned diet will help to achieve this goal and put you in the best possible shape to deal with whatever challenges MS brings your way. Learn about the benefits of the anti-inflammatory approach to lifestyle choices and tools to make wise diet choices, no matter what your current state of health.

Click here to view the PowerPoint presentation for this program (pdf).

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Tips and Gadgets

Posted by pae on May 13th, 2013

The sixth presentation in the 2013 LINKS Teleconference Series took place on May 7. Are you tired of losing your glasses, keys and anything else that passes through your hands? Do you feel your memory is taking a long lunch break? This teleconference featured discussion and sharing of simple, low-cost tips and gadgets that can make your day a little easier. Learn how to develop your own strategies and take some control over MS, as well as strategies for dealing with cognitive problems commonly associated with MS.

Click here to view the PowerPoint presentation for this program (pdf).

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