MS Society: Greater Delaware Valley

The lastest news about multiple sclerosis research and services in the Greater Delaware Valley area

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Archive for the 'Uncategorized' Category

The Hidden Effects of MS: Financial Survivability

Posted by pae on 9th May 2013

The fifth presentation in the 2013 LINKS Teleconference Series took place on April 30. Maintaining financial security is a high priority for people living with an unpredictable disease. The aim of this teleconference was to provide a basic understanding of how to apply for government benefits, prepare financially, review legal considerations including Special Needs Trusts, and the importance of family communication. Financial survivability with a chronic disease is possible with early and ongoing financial planning.

Click here to view the PowerPoint presentation for this program (pdf).

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Complementary approach to MS

Posted by pae on 25th April 2013

The third presentation in the 2013 LINKS Teleconference Series took place on April 16. In the United States, approximately 75% of people with MS use one form or another of complementary and alternative medicine, generally in combination with their prescribed MS treatments. This interactive workshop combined the best of the East and West in regards to managing MS. Participants learned a complementary approach including energy movement, such as Tai Chi and Qi Qong as a form of healing, as well as changes in diet, life style, and essential supplements in addition to the conventional medical treatments currently available.

Click here to view the PowerPoint presentation for this program (pdf).

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How to hire home health care

Posted by pae on 25th April 2013

The fourth presentation in the 2013 LINKS Teleconference Series took place on April 23. Sometimes MS symptoms can progress to the point that they significantly interfere with daily activities. When support is needed, home health care practitioners can help patients increase their ability to tend to their everyday needs at home, provide skilled nursing, as well as speech, occupational and physical therapy, and in many cases provide assistance with cooking and other household chores. This teleconference provided an overview of what to look for when hiring home health care, such as identifying present needs, advantages to using professional agencies, hiring on your own, conducting your search, screening and interviewing, agreements and words of caution.

Click here to view the PowerPoint presentation for this program (pdf).

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Care and recovery after a relapse

Posted by pae on 11th April 2013

The second presentation in the 2013 LINKS Teleconference Series took place on April 9. Exacerbation, attack, flare-up or relapse – no matter what you call it, if you have MS, you have experienced one. A relapse causes new symptoms or the worsening of old symptoms and the severity of the relapse can be unpredictable. Reducing your risk factors for relapses is crucial to controlling your MS, but knowing how to care for yourself when you do experience a relapse is equally as important. Learn more about self-care during a relapse.

Click here to view the PowerPoint presentation for this program (pdf).

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Getting the care you need: how to find the right care and use your appointment to the fullest

Posted by pae on 11th April 2013

The first presentation in the 2013 LINKS Teleconference Series took place on April 2. In today’s health care environment, there is seldom enough time during a single doctor’s visit to discuss all of your concerns - particularly given the number of symptoms MS can cause and the many ways it can affect your daily life. However, there are things you can do to make sure you are maximizing the time you spend in the doctor’s office. Hear first-hand from a Neurologist about what kinds of questions you should ask, how to make sure your doctor is really hearing your concerns, and how to be proactive to get the most out of your time as a step towards greater management of your own healthcare.

Click here to view the PowerPoint presentation for this program (pdf).

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How to Talk About MS to Your Employer

Posted by pae on 8th April 2013

The 2013 Employment Teleconference Series is a six part series focusing on career decisions and MS. The sixth teleconference took place on March 27, 2013. Once you decide to disclose there are still many unanswered questions. Hear from employers and disability advocates on how to talk with your employer about your MS.

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The Impact of Health Insurance on Career Decisions

Posted by pae on 18th March 2013

The 2013 Employment Teleconference Series is a six part series focusing on career decisions and MS. The fifth teleconference took place on March 13, 2013. Health insurance considerations can impact your decision to change jobs or leave the workforce. Learn about legal protections and questions to ask to ensure you have the coverage you need.

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WMMR’s Jaxon recaps MuckRuckus MS Philly 2012

Posted by pae on 14th June 2012

WMMR's Jaxon talks about his experience at MuckRuckus MS Philly 2012.

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Carepartner Teleconference: Caring for Yourself While Caring for Others

Posted by pae on 8th December 2011

Caring for someone with a chronic illness like multiple sclerosis can be deeply satisfying. Spouses and partners, family, and friends can be drawn more closely together by their shared concerns and collaborative efforts. But caregiving can also be physically and emotionally exhausting, particularly for the primary caregiver. While this is most often a partner or spouse, the primary caregiver may also be an adult child, parent, or friend. Whoever you are, remember that paying attention to your own health and well-being is essential to being able to care for someone else. This teleconference discusses the challenges and rewards of being a carepartner, as well as coping strategies, tips on stress management, managing multiple roles, preserving relationships, and finding support.

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WOGL interview with Tami Caesar and Sondra De Antonio

Posted by pae on 23rd March 2011

WOGL interviewed Tami Caesar and Dr. Sandra De Antonio during MS Awareness Week.

Tami Caesar, the president of the Greater Delaware Valley Chapter, has worked with the MS Society for 20 years in Seattle and Orlando before moving to Philadelphia in 2009.

Dr. Sondra De Antonio was a practicing neurologist when she was diagnosed with MS in 2006. She is now heavily involved with the National MS Society as a volunteer, with a special emphasis on public policy issues.

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