Dialogue with the Doctors, noon session

The audience got their questions about living with and treating MS answered by the region’s leading MS physicians. This was an open-ended discussion guided by the audience’s interests.

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Fast Forward In Depth with Dr. Timothy Coetzee

Timothy Coetzee presents a detailed and focused discussion of the Fast Forward initiative, its recent progress and its goals. He also answers questions about the initiative from the audience.

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Changes & Choices with Dr. Rosalind Kalb

Decisions such as which doctor to see, which medication to take, which employment path to pursue and whether to have children are all important questions that can weigh heavily on someone’s mind once they have been diagnosed with MS. The good news is that people living with MS have more options today than ever before — the challenge lies in figuring out how to make the choices that feel right for you and the other important people in your life.

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Depression & MS with William J. Lorman, PhD, MSN, PsyNP Livengrin Foundation and Diane Walker, RN, MS Griswold Special Care

Depression is one of the most disabling symptoms of MS, occurring more frequently among people living with the disease than in the general population or in people with other chronic conditions. About 50% of people living with MS experience depression at some point after diagnosis. But despite its reported prevalence, depression is not diagnosed in more than half of people living with MS, and when it is diagnosed, it is frequently not treated adequately. The speakers will discuss the different forms of depression, identify warning signs for caregivers and people living with MS and describe approaches that can successfully treat this disabling condition.

***A small portion of the beginning was cut off, we apologize for the inconvenience.

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Searching for Patterns: Health Policy Research in MS with Dr. Nicholas LaRocca

Results from Society-funded health policy research have increased our understanding of MS, how it affects people and families and its impact over time. This information has proven useful for planning and advocacy efforts and has stimulated additional research. Nicholas LaRocca will present a sampling of results from several of these studies, including the Sonya Slifka Longitudinal Multiple Sclerosis Study, a long-term study of more than 5,000 Americans with MS.

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Advocating for Your Health Care Needs with Suzanne Smeltzer, EdD Villanova University College of Nursing and Dorothea Cassidy Pfohl, RN, BS, MSCN University of Pennsylvania Health System

It’s up to you to be your own best advocate regarding your medical care. Suzanne Smeltzer and Dottie Pfohl will show you how to get involved by voicing your opinion, asking questions and taking an active role at the doctor’s office. They will share practical tips for preparing for medical appointments and explain how to take an active role during the visit.

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Positively Ageless with Linda Noble Topf Author, Motivational Speaker and Diane Chew, Inquiry Institute

Linda Noble Topf and Diane Chew will lead you in exercises that will help you identify your defining moments such as an MS diagnosis and discover your core strengths. They will then take you through how these defining moments and strengths can influence your future approach to dealing with challenges and successes.

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This program at the conference was created specifically for the parents and guardians of children living with MS.

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