MS Society: Greater Delaware Valley

The lastest news about multiple sclerosis research and services in the Greater Delaware Valley area

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August 19, 2014 - Carepartner Teleconference Series: How to Make Your Life Easier

Posted by pae on August 26th, 2014

Just as there are a wide range of abilities and disabilities among people with MS, there are a wide range of caregiving activities.  In this recording, we discuss the array of mobility aids, tools, technology, adaptive strategies, and environmental modifications available to help carepartners conserve energy, simplify work, and ensure safety for everyone.

Guest Speaker: Marnie Renda, OTR/L, CAPS, Independent Living Specialist

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August 7, 2014 - Finding the Right Balance: Diet, Exercise, and Lifestyle Modifications for MS

Posted by pae on August 13th, 2014

What do dietary supplements, exercise, and meditation have in common? They're all complementary and alternative therapies used in the treatment of MS symptoms. Join Dr. Allen Bowling, a neurologist and MS specialist, for a comprehensive overview of such therapies, with a particular focus on diet and exercise.

About the Presenter
: Dr. Allen Bowling, a nationally renowned neurologist and multiple sclerosis specialist in the Denver metropolitan area, has a longstanding interest in MS and has a passion for providing care to those with MS. He is currently the Medical Director of the Multiple Sclerosis Service at the Colorado Neurological Institute (CNI) and Clinical Associate Professor of Neurology at the University of Colorado-Denver and Health Sciences Center.

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June 24, 2014 - Dealing with the Emotions of Living with Progressive MS

Posted by pae on June 27th, 2014

Those with progressive MS suffer from Mood and Anxiety Disorders at the rate of 3-4x that of the general population. Behavioral medicine is often an important and necessary component in the interdisciplinary treatment of MS. Patients and family members might find the disease difficult to fathom, as they may feel that hopes, dreams, and goals for the future will drastically change. Individuals and family members may react in a number of different ways, including, but not limited to: grief, anxiety, anger, depression, fear, numbness, denial, hopelessness, and in the worst case suicidal ideation or intent. This program will cover the important psychological factors associated with Progressive MS as well as methods for treatment.

Guest Speaker:
Amy Burleson Sullivan, PsyD, is a health psychologist, and director of behavioral medicine, fellowship training and research at Cleveland Clinic’s Mellen Center for Multiple Sclerosis Treatment and Research. Dr. Sullivan’s specialty interests include consultation-liaison work, individual and family chronic disease management, pain management, depression and adjustment to phases of life.

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May 21, 2014 - CogniFitness: Keep the Mind Moving

Posted by pae on May 30th, 2014

Up to 60% of people with MS experience cognitive changes in some form. This call will discuss issues and engage you in practical activities. Learn exercises and strategies to help focus your attention, improve memory, planning & problem solving skills.

Speaker: Nancy Lowenstein, MS OTR, BCPR, Clinical Associate Professor at Boston University College of Health & Rehabilitation Sciences: Sargent College

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May 20, 2014 - Complementary Approach to the Management of MS

Posted by pae on May 30th, 2014

In the United States, approximately 75% of people with MS use one form of another of complementary and alternative medicine, generally in combination with their prescribed MS treatments. This teleconference will be an interactive workshop that combines the best of the East and the West in regard to managing your MS. Participants will learn a complementary approach including energy movement, such as Tai Chi and Qi Qong as a form of healing, as well as changes in diet, life style, and essential supplements in addition to the conventional medical treatments currently available.

Guest Speaker: Dr. Jerry Fleishman is a Board Certified Neurologist and Licensed Acupuncturist in addition to Director of Clinical Neurophysiology, Section Chief of Neurology, and Director of the Stroke Unit at the Franklin Square Hospital in Baltimore, MD. Dr. Fleishman is also a Clinical Instructor in Neurology at Johns Hopkins Medical Center.  He combines a complementary approach in his practice using the “Best of the East” and the “Best of the West” in the diagnosis and treatment of his patients.  Dr. Fleishman has lectured for numerous organizations over the years on topics of Neurology, as well as a complementary approach to good health and specific illnesses.  He has been named in Consumer’s Guide to Top Doctors in Maryland and “Top Doc” in the Baltimore Magazine.

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May 13, 2014 - Bladder Problems & MS

Posted by pae on May 30th, 2014

Bladder dysfunction, which can include frequency and/or urgency of urination, hesitancy in starting urination, frequent nighttime urination, and incontinence, occurs in at least 80% of people living with MS.  Join this call as we explore more about the normal neurologic control of the bladder and what can occur with MS regarding neurologic control. This call will also discuss signs and symptoms of bladder problems, diagnostic tests, and treatment options.

Guest Speaker: Dr. Lonny S. Green, M.D. is the director of the Virginia Women’s Continence Center in Richmond, VA.  He sees patients with urinary incontinence and bladder difficulties.  Dr. Green has received numerous honors, authored many articles in his field of study, and presented in the US and abroad. Dr. Green is a diplomate of the American Board of Urology, as well as the National Board of Medical Examiners.  He is active with the American Urological Association and is a fellow of the American College of Surgeons.

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April 29, 2014 - Essential Legal Documents

Posted by pae on May 30th, 2014

Estate planning for individuals with disabilities requires specific knowledge beyond ordinary legal documentation. This planning recognizes the special needs of a person with a disability and the relevant government benefits programs, care and living options, and quality of life. The cornerstone of an effective plan is an appropriately drafted Power of Attorney. While Powers of Attorney vary in characteristics, specific planning considerations related to disability issues must be considered in order to provide effective, long term use of this planning document.

Guest Speaker: Julian E. Gray, Certified Elder Law Attorney is the founder and managing attorney of Julian Gray Associates located in Moon Township and the South Hills of Pittsburgh, PA. Julian concentrates his practice in the areas of Elder Law, disability and special needs planning, as well as Veterans benefits. Mr. Gray received his undergraduate degree from Penn State University and his law degree from Duquesne University School of Law. Mr. Gray has been recognized as a Pennsylvania Superlawyer and in Best Lawyers in America. He is one of only a few Certified Elder Law Attorneys practicing in Western Pennsylvania. Julian Gray also authors a monthly Elder Law column in the Pittsburgh Post Gazette.

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May 6, 2014 - MS: The African-American Experience

Posted by pae on May 8th, 2014

The myth that African Americans do not get MS is just that — a myth. African Americans do get MS. In fact, studies suggest that MS can be especially active in African Americans. Listen in on this call as Dr. Mary Hughes, chair of the National MS Society’s African American Advisory Council, discusses issues ranging from clinical course of MS to response to therapy to genetics.  

Guest Speaker: Dr. Mary Hughes is chair of the Department of Neurology at Greenville Hospital System in South Carolina. She received her medical degree from the University of Tennessee and completed her residency at Emory University in Atlanta. She also completed a fellowship in neurology at the Medical College of Georgia. She is board certified in clinical neurophysiology by the American Board of Psychiatry and Neurology.  Prior to relocating to Greenville, she served as medical director of the Augusta (GA) Multiple Sclerosis Center and as an associate professor in the Department of Neurology at the Medical College of Georgia.

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April 30, 2014 - Achieving Optimal Wellness: Exercise & Nutrition

Posted by pae on May 6th, 2014

Learn about the benefits and importance of wellness behaviors, exercise and nutrition to manage the symptoms of MS.

Speakers:  Brian Quinn, PTA, MS, St. Charles Rehabilitation Network, Partner in MS CareMara Crans, MD, competitive triathlete living with MS for 18 years

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April 22, 2014 - Emotional Health and MS

Posted by pae on April 24th, 2014

In addition to its physical symptoms, MS may have profound emotional consequences that can seem confusing and overwhelming. Please join this call as we discuss the unpredictable emotional changes that may take place with MS, as well as how to manage emotional health with MS including physiological changes, symptom management and treatment options.

Guest Speaker:  Dr Cherie Hyder is currently a Senior Medical Liaison for Avanir Pharmaceuticals and is dedicated to Neurology and Psychiatry research.  She earned a BS degree in Molecular Biology and Chemistry at Iowa State University where she worked in Genetics research for 5 years.  She next earned the Doctor of Pharmacy degree at University of Missouri where she graduated with Honors.  She completed a JD degree with emphasis on patent law, FD&C Act and contract law.  Cherie worked as an Investigator at FDA for 5 years and moved into industry roles spanning Regulatory Affairs, Clinical Development, Quality Assurance, Business Development and Medical Affairs in PhRMA at Eli Lilly, Solvay Pharmaceuticals, Novartis and Pfizer prior to joining Avanir Pharmaceuticals, totaling more than 24 years.  She continues to develop courses and lectures on development of new medicines, bioethics, clinical research methods and clinical programs.

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