MS Society: Greater Delaware Valley

The lastest news about multiple sclerosis research and services in the Greater Delaware Valley area

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September 16, 2014 - To Tell or Not Tell: Disclosing Your MS

Posted by pae on September 25th, 2014

We know it can be difficult to hear the words "You have MS." There are so many questions that arise in the first few years about what the diagnosis means for you, how it will impact your relationships and career, and how to manage the chronic nature of the disease. This recording will outline the pros and cons of disclosing your symptoms and diagnosis to family, friends and employers, as well as federal laws that protect individuals with disabilities in the workplace.

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September 9, 2014 - Treatment Options

Posted by pae on September 25th, 2014

Just as the experience of living with multiple sclerosis varies from person to person, so too are the options available for managing one’s care. In this recording, you will learn about current MS therapies and those in the development pipeline.  You will also hear about effective treatment strategies and medications that offer relief for specific symptoms. The information from this recording will enable you to partner with your own doctor to formulate a personal MS care plan.

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September 2, 2014 - MS 101: Understanding MS

Posted by pae on September 25th, 2014

Whether you have or may have MS, or care about someone who does, finding the right information is an important step. Learning more about the disease can help ease the anxiety and confusion that sometimes comes. This recording covers the basics of multiple sclerosis including how to access information about MS and ask questions. 

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August 19, 2014 - Carepartner Teleconference Series: How to Make Your Life Easier

Posted by pae on August 26th, 2014

Just as there are a wide range of abilities and disabilities among people with MS, there are a wide range of caregiving activities.  In this recording, we discuss the array of mobility aids, tools, technology, adaptive strategies, and environmental modifications available to help carepartners conserve energy, simplify work, and ensure safety for everyone.

Guest Speaker: Marnie Renda, OTR/L, CAPS, Independent Living Specialist

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August 7, 2014 - Finding the Right Balance: Diet, Exercise, and Lifestyle Modifications for MS

Posted by pae on August 13th, 2014

What do dietary supplements, exercise, and meditation have in common? They're all complementary and alternative therapies used in the treatment of MS symptoms. Join Dr. Allen Bowling, a neurologist and MS specialist, for a comprehensive overview of such therapies, with a particular focus on diet and exercise.

About the Presenter
: Dr. Allen Bowling, a nationally renowned neurologist and multiple sclerosis specialist in the Denver metropolitan area, has a longstanding interest in MS and has a passion for providing care to those with MS. He is currently the Medical Director of the Multiple Sclerosis Service at the Colorado Neurological Institute (CNI) and Clinical Associate Professor of Neurology at the University of Colorado-Denver and Health Sciences Center.

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June 24, 2014 - Dealing with the Emotions of Living with Progressive MS

Posted by pae on June 27th, 2014

Those with progressive MS suffer from Mood and Anxiety Disorders at the rate of 3-4x that of the general population. Behavioral medicine is often an important and necessary component in the interdisciplinary treatment of MS. Patients and family members might find the disease difficult to fathom, as they may feel that hopes, dreams, and goals for the future will drastically change. Individuals and family members may react in a number of different ways, including, but not limited to: grief, anxiety, anger, depression, fear, numbness, denial, hopelessness, and in the worst case suicidal ideation or intent. This program will cover the important psychological factors associated with Progressive MS as well as methods for treatment.

Guest Speaker:
Amy Burleson Sullivan, PsyD, is a health psychologist, and director of behavioral medicine, fellowship training and research at Cleveland Clinic’s Mellen Center for Multiple Sclerosis Treatment and Research. Dr. Sullivan’s specialty interests include consultation-liaison work, individual and family chronic disease management, pain management, depression and adjustment to phases of life.

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May 21, 2014 - CogniFitness: Keep the Mind Moving

Posted by pae on May 30th, 2014

Up to 60% of people with MS experience cognitive changes in some form. This call will discuss issues and engage you in practical activities. Learn exercises and strategies to help focus your attention, improve memory, planning & problem solving skills.

Speaker: Nancy Lowenstein, MS OTR, BCPR, Clinical Associate Professor at Boston University College of Health & Rehabilitation Sciences: Sargent College

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May 20, 2014 - Complementary Approach to the Management of MS

Posted by pae on May 30th, 2014

In the United States, approximately 75% of people with MS use one form of another of complementary and alternative medicine, generally in combination with their prescribed MS treatments. This teleconference will be an interactive workshop that combines the best of the East and the West in regard to managing your MS. Participants will learn a complementary approach including energy movement, such as Tai Chi and Qi Qong as a form of healing, as well as changes in diet, life style, and essential supplements in addition to the conventional medical treatments currently available.

Guest Speaker: Dr. Jerry Fleishman is a Board Certified Neurologist and Licensed Acupuncturist in addition to Director of Clinical Neurophysiology, Section Chief of Neurology, and Director of the Stroke Unit at the Franklin Square Hospital in Baltimore, MD. Dr. Fleishman is also a Clinical Instructor in Neurology at Johns Hopkins Medical Center.  He combines a complementary approach in his practice using the “Best of the East” and the “Best of the West” in the diagnosis and treatment of his patients.  Dr. Fleishman has lectured for numerous organizations over the years on topics of Neurology, as well as a complementary approach to good health and specific illnesses.  He has been named in Consumer’s Guide to Top Doctors in Maryland and “Top Doc” in the Baltimore Magazine.

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May 13, 2014 - Bladder Problems & MS

Posted by pae on May 30th, 2014

Bladder dysfunction, which can include frequency and/or urgency of urination, hesitancy in starting urination, frequent nighttime urination, and incontinence, occurs in at least 80% of people living with MS.  Join this call as we explore more about the normal neurologic control of the bladder and what can occur with MS regarding neurologic control. This call will also discuss signs and symptoms of bladder problems, diagnostic tests, and treatment options.

Guest Speaker: Dr. Lonny S. Green, M.D. is the director of the Virginia Women’s Continence Center in Richmond, VA.  He sees patients with urinary incontinence and bladder difficulties.  Dr. Green has received numerous honors, authored many articles in his field of study, and presented in the US and abroad. Dr. Green is a diplomate of the American Board of Urology, as well as the National Board of Medical Examiners.  He is active with the American Urological Association and is a fellow of the American College of Surgeons.

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April 29, 2014 - Essential Legal Documents

Posted by pae on May 30th, 2014

Estate planning for individuals with disabilities requires specific knowledge beyond ordinary legal documentation. This planning recognizes the special needs of a person with a disability and the relevant government benefits programs, care and living options, and quality of life. The cornerstone of an effective plan is an appropriately drafted Power of Attorney. While Powers of Attorney vary in characteristics, specific planning considerations related to disability issues must be considered in order to provide effective, long term use of this planning document.

Guest Speaker: Julian E. Gray, Certified Elder Law Attorney is the founder and managing attorney of Julian Gray Associates located in Moon Township and the South Hills of Pittsburgh, PA. Julian concentrates his practice in the areas of Elder Law, disability and special needs planning, as well as Veterans benefits. Mr. Gray received his undergraduate degree from Penn State University and his law degree from Duquesne University School of Law. Mr. Gray has been recognized as a Pennsylvania Superlawyer and in Best Lawyers in America. He is one of only a few Certified Elder Law Attorneys practicing in Western Pennsylvania. Julian Gray also authors a monthly Elder Law column in the Pittsburgh Post Gazette.

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