MS Society: Greater Delaware Valley

The lastest news about multiple sclerosis research and services in the Greater Delaware Valley area

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March 3, 2015 - Managing Your MS: An update from the National MS Society featuring Dr. Joseph R. Berger

Posted by pae on March 16th, 2015

In this presentation, Dr. Joseph R. Berger provides an overview of the available disease-modifying therapies and addresses the benefits and risks involved in making these treatment and lifestyle decisions.

Dr. Berger, Professor of Neurology at the Hospital of the University of Pennsylvania, is Board Certified in Neurology and Internal Medicine and has clinical expertise in multiple sclerosis.

Play the audio presentation below, or click here to access PowerPoint slides with audio. View the PowerPoint in slideshow mode, and audio should begin automatically. Slides will advance in time with the audio. If you have trouble activating the audio, click "enable editing" when you download the PowerPoint, or double-click on the speaker icon in the lower right corner of the first slide.   

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March 4, 2015 - All About SSDI/SSI: An interview with Jamie R. Hall, Esq.

Posted by pae on March 4th, 2015

In this interview, Jamie R. Hall, Esquire, answers frequently questions about SSDI and SSI, including:

  • Why do people get denied? 
  • What can I do to get approved? 
  • What types of disability are there and who can apply?
  • How long does it take and what can you expect?
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November 12, 2014 - Strengthening Family Resilience

Posted by pae on November 13th, 2014

MS happens to families, not just to individuals. Listen to this recording and learn about coping strategies to help individuals and families handle the challenges associated with daily caregiving.

Guest Speaker: Mary Elizabeth Huff, MSS, LCSW, MBA

Mary Elizabeth Huff received a Bachelor of Arts degree from Vanderbilt University, a Master of Business Administration degree from Widener University and a Master of Social Service degree from Bryn Mawr College Graduate School of Social Work and Social Research. She is licensed to practice in Delaware and Pennsylvania. Mary has worked in various for-profit and non-profit settings since 1979, including financial institutions, hospitals, hospice, and community service agencies. She completed one-year internships at Christiana Care Health System's Family Medicine/Geriatric Practice and the Veteran's Administration Medical Center's Mental Health Clinic.

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September 16, 2014 - To Tell or Not Tell: Disclosing Your MS

Posted by pae on September 25th, 2014

We know it can be difficult to hear the words "You have MS." There are so many questions that arise in the first few years about what the diagnosis means for you, how it will impact your relationships and career, and how to manage the chronic nature of the disease. This recording will outline the pros and cons of disclosing your symptoms and diagnosis to family, friends and employers, as well as federal laws that protect individuals with disabilities in the workplace.

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September 9, 2014 - Treatment Options

Posted by pae on September 25th, 2014

Just as the experience of living with multiple sclerosis varies from person to person, so too are the options available for managing one’s care. In this recording, you will learn about current MS therapies and those in the development pipeline.  You will also hear about effective treatment strategies and medications that offer relief for specific symptoms. The information from this recording will enable you to partner with your own doctor to formulate a personal MS care plan.

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September 2, 2014 - MS 101: Understanding MS

Posted by pae on September 25th, 2014

Whether you have or may have MS, or care about someone who does, finding the right information is an important step. Learning more about the disease can help ease the anxiety and confusion that sometimes comes. This recording covers the basics of multiple sclerosis including how to access information about MS and ask questions. 

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August 19, 2014 - Carepartner Teleconference Series: How to Make Your Life Easier

Posted by pae on August 26th, 2014

Just as there are a wide range of abilities and disabilities among people with MS, there are a wide range of caregiving activities.  In this recording, we discuss the array of mobility aids, tools, technology, adaptive strategies, and environmental modifications available to help carepartners conserve energy, simplify work, and ensure safety for everyone.

Guest Speaker: Marnie Renda, OTR/L, CAPS, Independent Living Specialist

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August 7, 2014 - Finding the Right Balance: Diet, Exercise, and Lifestyle Modifications for MS

Posted by pae on August 13th, 2014

What do dietary supplements, exercise, and meditation have in common? They're all complementary and alternative therapies used in the treatment of MS symptoms. Join Dr. Allen Bowling, a neurologist and MS specialist, for a comprehensive overview of such therapies, with a particular focus on diet and exercise.

About the Presenter
: Dr. Allen Bowling, a nationally renowned neurologist and multiple sclerosis specialist in the Denver metropolitan area, has a longstanding interest in MS and has a passion for providing care to those with MS. He is currently the Medical Director of the Multiple Sclerosis Service at the Colorado Neurological Institute (CNI) and Clinical Associate Professor of Neurology at the University of Colorado-Denver and Health Sciences Center.

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June 24, 2014 - Dealing with the Emotions of Living with Progressive MS

Posted by pae on June 27th, 2014

Those with progressive MS suffer from Mood and Anxiety Disorders at the rate of 3-4x that of the general population. Behavioral medicine is often an important and necessary component in the interdisciplinary treatment of MS. Patients and family members might find the disease difficult to fathom, as they may feel that hopes, dreams, and goals for the future will drastically change. Individuals and family members may react in a number of different ways, including, but not limited to: grief, anxiety, anger, depression, fear, numbness, denial, hopelessness, and in the worst case suicidal ideation or intent. This program will cover the important psychological factors associated with Progressive MS as well as methods for treatment.

Guest Speaker:
Amy Burleson Sullivan, PsyD, is a health psychologist, and director of behavioral medicine, fellowship training and research at Cleveland Clinic’s Mellen Center for Multiple Sclerosis Treatment and Research. Dr. Sullivan’s specialty interests include consultation-liaison work, individual and family chronic disease management, pain management, depression and adjustment to phases of life.

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May 21, 2014 - CogniFitness: Keep the Mind Moving

Posted by pae on May 30th, 2014

Up to 60% of people with MS experience cognitive changes in some form. This call will discuss issues and engage you in practical activities. Learn exercises and strategies to help focus your attention, improve memory, planning & problem solving skills.

Speaker: Nancy Lowenstein, MS OTR, BCPR, Clinical Associate Professor at Boston University College of Health & Rehabilitation Sciences: Sargent College

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